SO MUCH SO
FAST
December 16
7 p.m.
With Special Guests, Christian Dimaano and Alan Alderman
Free
Utah Museum of Fine Arts
Dumke Auditorium
410 Campus Center Drive
Salt Lake City
What would you do if you were 29 and
found you may only have a few years to live? SO MUCH SO FAST is about the
remarkable events set in motion when Stephen Heywood discovered he had the
paralyzing neural disorder ALS (Lou Gehrig's disease). Made over 5
years, SO MUCH SO FAST tracks one family's ferocious response to an
orphan disease: the kind of disease drug companies ignore because not there's
not enough profit in curing it. In reaction, and with no medical background,
Stephen's brother Jamie creates a research group and in two years builds it from
three people in a basement to a multi-million dollar ALS mouse facility. Finding
a drug in time becomes Jamie's all-consuming obsession.
There will be a post-film discussion and Q&A with Christian Dimaano, a scientist in the cancer biology
division of Myriad Pharmaceuticals, Inc. who will discuss the difficulties in
research from a science viewpoint and Alan
Alderman, the Awareness and Public Policy Chair for ALS Association of
Utah who has been living with ALS for the past 8 years.
Accommodations
All films will be captioned, have audio commentary, sign language
interpreters and live captioning will be available for the post-film discussion.
We have a limited number of assistive listening devices. If you happen to have a
tan Comtek receiver that you use at an LDS chapel, please bring it with you
because it is compatible with the system at the museum. To make arrangements,
please contact Ashley Campbell at (801) 363-1347 (Voice/TDD) or at
acampbell@disabilitylawcenter.org with a
minimum of 3 days notice.
Parking
Free, accessible parking is located near the auditorium, but there is
construction going on in the area. Signs will also be posted directing you where
to park. We offer free validation for all pay lots.
Click here for a map and driving directions
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